SOOOOOO i have had such a wonderful couple of weeks but i am so glad to be back home! This past weekend mom and I made a quick, whirlwind trip to Chicago to the Dystonia Medical Research Foundation's Children and Family Symposium. What an experience that was to say the least! We were able to meet some amazing kids, brave parents, and beautiful people all around! There were people that have known they had dystonia for 50 years and there were people that were just weeks into a diagnosis. What a beautiful experience to watch as people connected through something so bizarre and so devastating but it creates such a beautiful bond among people! I am so blessed to have been able to go and hear the most recent on research developments, medical advances and all kinds of other things. Thanks to DMRF for the opportunity that i received and the blessing i got from it! WOW..... it will go with me forever!
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